Wednesday, August 19, 2009

Medical- Diagnosis

So, you all may or may not know that I had a colonoscopy last Tuesday. We were fairly confident that we would recieve good news but as it turned out the news was just the opposite. This is an e-mail that my mom sent out explaining things. I wanted to share and let you all know what is going on so here it is!...
Dear Family & Friends,As many of you know, Kailen had a colonoscopy Tuesday and we are now dealing with the findings from that colonoscopy. Below, I’ve tried to explain where things stand as briefly & thoroughly as possible. Please feel free to pass this information on to anyone you know who will join us in praying for Kailen’s healing.
Due to Kailen dealing with chronic anemia & having been diagnosed several years ago with ulcerative colitis, her doctors wanted to do a colonoscopy Tuesday to verify that she was not losing blood in her colon. As far as symptoms go, the ulcerative colitis has appeared to be in remission. However, the only way to verify the colon wasn’t bleeding was to do a colonoscopy. The report from the colonoscopy was not good. The doctor didn’t go all the way through her colon for fear of perforating the colon. He labeled what he saw as severe ulcerative colitis and said it was as bad as he’s seen.
Medically speaking, there is one option considered to be a definite option, colon removal, and one possible option, a drug called Remicade, an immunosuppressant. One of the contraindications of Remicade is a lung history of pneumonia, which Kailen has a history of. In other words, because the drug wipes out your immune system, it is not uncommon for people on Remicade to die from respiratory failure, especially if they have a history of lung infections. The gastroenterologist also said Kailen’s colon remaining in the state it is currently in would definitely lead to 1) cancer or 2) the colon perforating itself, and he would like for all of us together to have arrived at a plan of treatment by December.
We are approaching this from several perspectives— spiritually, medically, and naturopathically: · Spiritually — we have been, are, and will continue to ask & believe God for total & complete healing in her colon.· Medically — we will meet with her pulmonoligist to get his input on her lungs & Remicade. We will also meet with an infectious disease specialist at the request of the gastroenterologist.· Naturopathically — Kailen has been vegan now for 2 months and will continue that same course. She is also taking several supplements which have proven to be good for the colon and have achieved positive results in people diagnosed with ulcerative colitis. We would like to ask you to join us in praying for Kailen’s healing. We would also like prayer for wisdom & peace as we walk out these next few months. We are so thankful you are our family & friends.
...So I hope that helps you all understand kind of what is going on. If you have any questions or anything feel free to call/text/message whatever. I've been a bit shocked by the news but I'm not unwilling to talk about it :) I know God is still God and there is no definite "end of the line" until He says so!
Love you all.

2 comments:

  1. Kailen, I will be praying for you.
    Love you,
    Lorie

    ReplyDelete
  2. I'm so glad you got a blog! This is one of my favorite activities, personally!

    I love you infinitely, and my thoughts are going out to you.

    Laryssa

    ReplyDelete